OK I just wanted to post this here so I have everything in one place. This is the diagram her GI helped me to write out. I have all the copies of her medical records and notes from both of her bowel resections that I want to scan into the computer. Consider that a note to self. Details that can be extracted from the drawing are:
She has 2-4cm of jejunum(no duodenum, ileum or ileocecal valve) to her transverse colon(she has 6cm) to her Sigmoid colon(10-12cm) top to bottom 18-22cm. Not much, but shes still growing my hope is that we can grow her big enough to get "enough" gut that she might be able to look forward to a bowel lengthening surgery, and maybe some good bowel rehab and adaptation...then ofcourse there is always the option of a transplant(but Id like to avoid that for as long as possible...)
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