Wednesday, April 2, 2008
Where do I even start?
I'm tired so I'm not sure this is the best time for a blog post but I'm afraid if I don't get this stuff down it might just as well be gone for good. It seems I do have some resilience after all, in the case of me in comes in the form of selective memory. One of the past three days--why yes you see the selective memory is already kicking in!!....I went to change Mari and noticed her shirt was wet. I looked down and what do you know? She had no g-tube in place...just a nice fat juicy hole in her abdomen, yeah. Totally traumatic. This all might be old hat to many of the parents who Ive begun to associate with but for me? Not so much. I wasn't sure what to do next. I had after all, no clue how long it had been out. I started to instruct each of my children to hunt for it and soon it was found. Then some common sense popped in and I decided it wouldn't be the best idea to reinsert the same mi-c key so I began to search for the extra I had on hand. It was quite literally 10inches away from my face yet it took me about 10minutes to find it. Once I did I lubed it up(with water, because its all I had) and popped it right in without incident. It was amazingly simple and drama free, who knew? This morning I went in to wake her and the back of her shirt was soaked. I tape her CVL over her shoulder to keep her curious fingers off the connecting parts. Sure enough her line was broken, damnit. So I called the tpn nurse and she had another tpn nurse meet me at the hospital(an hour away) to repair it. I wasn't home until 5pm so it took all day and she got two shots of antibiotics. She vomited on the drive home and then again before bed. I only had to do one dressing change thankfully. This brings me to a conversation I had with her specialty team today(over the phone mind you as I couldn't attend clinic because we were repairing her line) Ive been confused as hell. I'm keeping a journal of everything that goes in and out. I couldn't for the LIFE of me figure out why we can go a week without any vomiting or diarrhea and then out of the blue(when nothing has changed) she will suddenly vomit etc. Well one member of the team asked me if I noticed a correlation with the flagyl. Sure enough she didn't vomit at all last week when she was on it and has had several bouts with vomiting this week(her week off) SO we are going to try out constant tx and see what happens. I hope this is it. Though I am sure it will only be one in a long line of "its" over this child's lifetime. I found out today that this is the longest Marissa has ever gone without a line infection. Today is my 120th day as her mom. Seems like YEARS. We've had 6trips to the hospital in those 120days with 3hospitalizations, thankfully none of them due to a line infection. That's it I'm so tired I cant see anymore.
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1 comment:
wow... way to go on keeping the line infection free :D that's got to be a milestone you're proud of!
I think you're doing an amazing job with marissa!
Ashley
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